It supports member families in their efforts to: Improve the quality of life for all Indian people with Prader-Willi Syndrome and their families. Improves the physical and mental wellbeing, socially as well as occupationally, of all people with PraderWilli syndrome, so that they may, according to their wishes, lead a life as normal as possible and be in a position to achieve their full potential as allowed by the constitution of India. .IPWSA endeavours and co-operate and/or affiliate itself with other organizations with similar objectives.
IPWSA is affiliated to IPWSO (International PraderWilli Syndrome Organization) and ORDI (Organization for Rare Diseases India). IPWSA acts as a liaison to collate and disseminate PWS material for its members by internal communication, social media and organizing national and international events and conferences. By doing so it aims to, stimulate international cooperation on PWS research projects on the origins, management and prevention of the Prader-Willi syndrome.
Join us in making a difference. Together, we can creative positive change in order to leave a lasting impact. Volunteer your time & talents to support our mission and help those in need.
Prader-Willi syndrome is the most common known genetic cause of life-threatening obesity in children. The incidence rate of Prader-Willi syndrome is estimated to be one in 1/15000. It is a complex genetic disorder related to problems along chromosome 15. The precise location of the abnormality being designated as 15(q11-q13). The genes lacking in people with PWS have a major role in the regulation of appetite and metabolic levels, cognitive functions and behaviour patterns,
PWS causes organic malfunction to the hypothalamus in the brain. This malfunction is irreversible. Historically, treatments with pharmacotherapy, surgery, or behaviour modification techniques to abate the hunger have not been effective. Only very consistent, around the clock management controls keep people with PWS from tragic, premature death due to morbid obesity.
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Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail
Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail
Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail
Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail
Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail, Canthigaster rostrata. Midshipman dartfish Modoc sucker, yellowtail kingfish
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Murray cod clownfish American sole rockfish dojo loach gulper, trout-perch footballfish, pelican eel
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Gray eel-catfish longnose whiptail catfish smalleye squaretail queen danio unicorn fish shortnose gr
Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail, Canthigaster rostrata. Midshipman dartfish
Jan 30, 2020 - 10:00 am
Jan 30, 2020 - 10:00 am
Apr 20, 2020 - 10:00 am
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Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail canthigaster rostrata. Midshipman dartfish Modoc sucker, yellowtail
Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail canthigaster rostrata. Midshipman dartfish Modoc sucker, yellowtail. Phasellus mattis bibendum augue, sit amet egestas dui semper at. Donec accumsan purus ut ante tincidunt lobortis. Sed mi ipsum, consequat tristique hendrerit in, placerat sed leo.
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