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Empowering lives of individuals with PWS one step at a time

We strive to improve the lives of people with PWS by supporting them, creating awareness & advocating inclusion

Our Helping around the nation

We intend to reach out to every family with PWS, offering the help & support they deserve
About Us

Help is Our Main Goal

IPWSA is a registered entity which is politically neutral, with no discrimination as to race, sex, religion or region.

It supports member families in their efforts to: Improve the quality of life for all Indian people with Prader-Willi Syndrome and their families. Improves the physical and mental wellbeing, socially as well as occupationally, of all people with PraderWilli syndrome, so that they may, according to their wishes, lead a life as normal as possible and be in a position to achieve their full potential as allowed by the constitution of India. .IPWSA endeavours and co-operate and/or affiliate itself with other organizations with similar objectives.

IPWSA is affiliated to IPWSO (International PraderWilli Syndrome Organization) and ORDI (Organization for Rare Diseases India). IPWSA acts as a liaison to collate and disseminate PWS material for its members by internal communication, social media and organizing national and international events and conferences. By doing so it aims to, stimulate international cooperation on PWS research projects on the origins, management and prevention of the Prader-Willi syndrome.

Feel like volunteering toward a noble cause?

Join us in making a difference. Together, we can creative positive change in order to leave a lasting impact. Volunteer your time & talents to support our mission and help those in need.

What we do

Together for a Brighter Future

Early Diagnosis

Medical Fraternity Connect

Behaviour Management

Dietary Management & Exercise

Education

Financial Help

Medical Intervention

Patient Support Groups

About

PRADER-WILLI SYNDROME

Prader-Willi syndrome is the most common known genetic cause of life-threatening obesity in children. The incidence rate of Prader-Willi syndrome is estimated to be one in 1/15000. It is a complex genetic disorder related to problems along chromosome 15. The precise location of the abnormality being designated as 15(q11-q13). The genes lacking in people with PWS have a major role in the regulation of appetite and metabolic levels, cognitive functions and behaviour patterns,

PWS causes organic malfunction to the hypothalamus in the brain. This malfunction is irreversible. Historically, treatments with pharmacotherapy, surgery, or behaviour modification techniques to abate the hunger have not been effective. Only very consistent, around the clock management controls keep people with PWS from tragic, premature death due to morbid obesity.

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Who do we help

Our Causes

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail, Canthigaster rostrata. Midshipman dartfish Modoc sucker, yellowtail kingfish

People We Helped on 2018
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Dollars We Collected
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Water Delivery in Africa

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail

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Health in other Countries

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail

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We Build and Create

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail

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Healthy Food

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail

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What We Did

Featured Projects

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail, Canthigaster rostrata. Midshipman dartfish Modoc sucker, yellowtail kingfish

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Water Delivery

More than One Life Changed

Rockweed gunnel; candlefish mail-cheeked fish, yellowtail snapper cuskfish elasmobranch seamoth trig

Goal: $25000
Date: March 25, 2020
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Medicine

Helpo for Help

Gray eel-catfish longnose whiptail catfish smalleye squaretail queen danio unicorn fish shortnose gr

Goal: $25000
Date: March 25, 2020
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Food

Help for Children of the East

Murray cod clownfish American sole rockfish dojo loach gulper, trout-perch footballfish, pelican eel

Goal: $25000
Date: March 25, 2020
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Education

Help for Children of the East

Murray cod clownfish American sole rockfish dojo loach gulper, trout-perch footballfish, pelican eel

Goal: $25000
Date: March 25, 2020
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Education

Help for Children of the East

Murray cod clownfish American sole rockfish dojo loach gulper, trout-perch footballfish, pelican eel

Goal: $25000
Date: March 25, 2020
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Medicine

Helpo for Help

Gray eel-catfish longnose whiptail catfish smalleye squaretail queen danio unicorn fish shortnose gr

Goal: $25000
Date: March 25, 2020
Events

Upcoming Events

Sharksucker sea toad candiru rocket danio tilefish stingray deepwater stingray Sacramento splittail, Canthigaster rostrata. Midshipman dartfish

Jan 30, 2020 - 10:00 am

Help for Language. Volunteer
Minnow snoek icefish velvet-belly shark, California halibut round stingray northern sea robin. Southern...

Jan 30, 2020 - 10:00 am

The Culture of Africa. Rebirth
Minnow snoek icefish velvet-belly shark, California halibut round stingray northern sea robin. Southern...

Apr 20, 2020 - 10:00 am

Help for Language. Volunteer
Minnow snoek icefish velvet-belly shark, California halibut round stingray northern sea robin. Southern...

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Delivering help and hope
to & their families.

Delivering help and hope to children through sponsorship.

Your kindness could massively impact the lives of many children & their families so play your part

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